2.1 Are there any Web sites I should check out?
Description
This article is from the Inflammatory Bowel Disease FAQ, by Susan Blank smb@panix.com with numerous contributions by others.
2.1 Are there any Web sites I should check out?
Plenty. So many, in fact, that I doubt I'll ever be able to list them all
However, Bill Robertson may have succeeded in doing exactly that at
his Crohns Disease/Ulcerative Colitis/Irritable Bowel Syndrome website
at qurlyjoe.bu.edu/cduchome.html. Not only can all FAQs for
alt.support.crohns-colitis be found at this location, but links to more
related websites than you can possibly imagine are here. In fact, after
visiting Mr. Bill's site, you may never need to read further.
Another great Web Site is www.kitsap.net/health/ccl/ibd.html.
Here you'll find all past issues of IBDetails, a very informative and
entertaining newsletter devoted to IBD. Paul Neal has also started
an IBD Home Page at this site, with a collectionof IBD related sites.
The URL for this page is www.kitsap.net/health/ccl/index.html.
The new SCOPE Newsletter is be available at this site at the
following URL: www.kitsap.net/health/ccl/scope.html.
Information on gastrointestinal, liver and nutritional disorders can be found
at the COLUMBIA UNIVERSITY GASTROENTEROLOGY WEB,
home page of the Division of Gastroenterology at Columbia University's
College of Physicians and Surgeons and The Presbyterian Hospital in The
City of New York. The URL is cpmcnet.columbia.edu/dept/gi.
Scripps Clinic Inflammatory Bowel Disease Center can be found at
www.free.cts.com/crash/y/yekkim/index.html
Also check out the University of Pennsylvania Digestive and Liver Center
at www.med.upenn.edu/~gicenter
Gastroenterologist Steve Holland has an informative IBD Page
at 128.248.251.136
Fellow Crohn's patient Anthony Longo answers your
questions about medication at users.aol.com/cducrx/crohns.html
Statlander's Pharmacy, a mail-order pharmacy, has an IBD focus area at
www.stadlander.com/ibd
The Olde Crohn is a nonprofit ejournal on Crohns, Colitis and
Inflammatory Bowel Disease. It is produced every other month by
volunteers and through the donation of online time from Novus
Research. The Olde Crohn is free and may be freely copied and
distributed. It can be found at ftp://ftp.etext.org
People with Crohns, Colitis, and ostomies can contact others in similar
situations at The First Dutch Ostomy Homepage,
www.worldcity.nl/~rump/vereg.html.
A website by a bunch of guys with their very own
gastroenterology practice can be found at http://www.gastro.com. Lots of
neat pictures of healthy and not-so-healthy parts of the body can be
found here.
CenterWatch, a publishing company that covers clinical research, has
established a site on the Internet that patients can use to search for
clinical trials by therapeutic area and by geographic region. Each posting
contains contact information. The site currently includes several postings
for trials for treating immune-system disorders. The Internet address is:
www.centerwatch.com. In addition, CenterWatch offers a free
e-mail notification service for patients interested in clinical trials.
To use this service, send CenterWatch an e-mail message at
Cntrwatch.aol.com. Tell them the therapeutic area you are
interested in and your home state (or geographic region if you want to know
about a greater selection of trials.) They will then send you an e-mail message
whenever a hospital or medical center in your designated geographic region
posts a trial for that therapeutic area. The message will contain the
appropriate contact information. Please note: The center or physician posting
the study is not provided your name or e-mail address. The decision to
contact the center is the patient's alone.
PharmInfoNet, a Web site devoted to pharmaceutical information, has
FAQs on many drugs. Find them at pharminfo.com.
Check Out the Multimedia Medical Reference Library at
www.med-library.com. It's one of the most (if not
the most) comprehensive indices to medical sites on the web.
Another comprehensive index is the Hardin Meta Directory of Internet
HealthSources (aka Hardin MD). It's URL is:
www.arcade.uiowa.edu/hardin-www/md.html
www.arcade.uiowa.edu/hardin-www/md-gastro.html (Gastroenterology).
Don Wiss has set up the following webpages of interest:
The IBS Page: www.panix.com/~ibs/
The Gluten-Free Page: www.panix.com/~donwiss/
The No Milk Page: www.panix.com/~nomilk/
The Candida Page: www.panix.com/~candida/
The Irritable Bowel Syndrome Page also includes some links on
constipation, diarrhea, and gas.
The Gluten-Free Page covers celiac disease, gluten sensitivity, and
dermatitis herpetiformis.
The No Milk Page covers material on lactose intolerance, milk allergy, and
casein avoidance.
Alan Kennedy makes the argument for mycobacterium paratuberculosis
as a causal agent of Crohn's Disease on his website at
www.crohns.org
Recipes from a colitis cookbook can be found at
ourworld.compuserve.com/homepages/colitis_cookbook
Peter Waite's Crohn's Disease Web Page can be found at
members.aol.com/bospol/homepage/crohns.htm
Go to www.public.iastate.edu/~sbilling/ada.html
for lots of links to ADA and disability information. Only
applicable, of course, to U.S. workers.
Look up a doctor's credentials at AMA Physician Select
www.ama-assn.org
Since many IBD sufferers also have arthritis of one form or another, I
thought I'd include the web address for the Arthritis Foundation, at
www.arthritis.org
Finally, there are lots of great personal Webpages by and for people with IBD
out there. Here are some to check out:
GutFeelings- members.aol.com/RickAtheDJ/GutFeelings.html
IBD Creative Outlet- members.aol.com/HobbsHs/ibd/ibd.htm
Pouchclip(ostomy support)- www.hsv.tis.net/~kerryk/Pouchclip/
Sandra's Crohn's Disease Page- www.angelfire.com/ga/crohns/index.html
Teens with Crohn's Disease- pages.prodigy.com/teencron/index.html
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